Early Steps Evaluation

Yesterday we had our evaluation to see if she qualified for the early steps program. She does. We will be having and Occupational Therapist coming to the house to work on getting her to use her hands, also rolling over and show us what we can to besides just playing with her. We also need to make an appt with and audiologist and a opthomogist. She scored really low on both the hearing and seeing questions/situations. Thank God programs like this exist!

Feeding seems like its getting better. Its not taking as long to feed her and she isn't screaming as much during the feeding. This is the 3rd forumla change and we are also thickening her bottle with cereal.

Hope everyone is having a Merry Christmas!

Update on Newest Doctors appt.

Today was Rebecca's Neurology Appt. She is going to have a CT scan done to check to make sure there are no calcifications to indicate a prior infection (like in utero). She isn't really using her hands to grab things and isn't rolling over yet. She is smiling and blabbing to us though. They want to make sure the clot she had hasn't effected anything. We have an assessment with Early Steps tomorrow. Which is a physical / occupational therapy group that works with children 0-3 years. I switched pediatricians and the new Doctor I really like. She spent 40 min with me going over her history and what we could work on with her feeding problems. At Rebecca's Urology appt., last Thursday 12/11, she was diagnosed with Level 2 reflux of the kidney's. He said it should resolve on its own. The doctor put her on 1.5ml of Septra an antibiotic to prevent an infection. In 6 months she will have another ultrasound to look at the kidneys. At the Hemo/ Oncologist appt., she was diagnosis with Prothrombin Gene Mutation 20210. It is hereditary,Will and I have not been tested yet. She will be on Lovenox til the end of January, when she will have another MRI done to make sure her brain is still clear. If it is, than she will be taken off the Lovenox.

Richard's vocabulary is expanding everyday. He loves his baby sister! I am looking into the HIPPY program for when he turns 3. Is a free program offered in Pinellas, that offers Parents that stay home with their preschoolers, curriculum to encourage learning. I am looking forward to it. Richard is also potty learning, YAY! Still in a diaper at night but its very nice to be diaper free during the day. He loves his friends in the mommy group we belong to. Richard is also very excited that Santa is coming soon. He is ready to give his toys to other kids, so he can get different toys.

Mom is doing well. She is almost always tired but thats getting to be normal. We will be baking cookies this weekend and she loves doing that.

Hello to all my family and friends

I thought it would be a cool idea to keep up a blog for our family website. This way everyone can read what is going on in our lives. Hope this will keep you updated. Have a wonderful holiday!